A
photo study of me participating in a study for a research company involved
in a heated debate about a gene mapping database to be created and whether
there would be any personally identifiable, possibly sensitive, data to
be obtained from it.
I thought this to be a very misguided debate as such things like medical
records can be fairly easily accessed if one really "needs"
to.
In
my opinion this should have been more about the fact that the government
was not just giving the company access to those records, but mandating
doctor to make the entrys to the database, and so in essence though it
may have taken a lot of work ot create this database all further work
was to be done for free by our doctors paid by our tax money for them
to do research on an sell.
Therefore,
when I was asked to participate in a study of theirs as a comparative
individual I didn't just say ok, but went in and photographed the whole
process, then displayed it for all to see as to ridicule this discussion
of personally identifiable data.
Iceland is simply to small a community.
So
I went, a pre-paid taxi-ride back and forth, signed all the papers, had
my blood drawn, got my "prize"-T-shirt and went back home with
a band-aid on my arm.